Columnist Connie Chandler says that people in a wheelchair like to dance like everyone else and deserve some technical ...

In an exclusive Q&A, a Biogen exec discussed the developer's quest to 'rapidly' bring its experimental SMA therapy salanersen ...

For Cure SMA, August is the time to shine a spotlight on the SMA community and to help raise awareness about the rare genetic ...

Ryan Manriquez recalls his first Cure SMA conference, finding laughter, connection, community while rolling through Disneyland with friends.

When SMA symptoms like muscle weakness leave her feeling like a Muppet, columnist Connie Chandler depends on the strength of her community.

From accessibility to maps to food and more, Allie, Jose, Shaniqua, Andrew, and Ryan share tips for visiting theme parks with SMA.

Connie Chandler is the director of family engagement at the nonprofit organization We Carry Kevan. She grew up in the foothills of North Carolina but now owns a home and lives in Fort Wayne, Indiana.